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    Ethics in Lived Experience Research (Employees of UNSW, SESLHD, Black Dog Institute and NeuRA - Discount Tickets $20: Use code ETHICSVIP24)

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    Mindgardens Neuroscience Network
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      ETHICSVIP24 to access staff tickets
    • INTRODUTION TO ETHICS IN LIVED EXPERIENCE RESEARCH 

      • Overview of the principles of safely involving people with lived experience in research.
      • Processes for supporting the ethical involvement of people with lived experience.
      • How to navigate ethical challenges.
      • Capacity and consent.
      • Participant safety.
      • Involving peer workers and peer researchers.
      • Remuneration.
      • Working with HREC.
      • A series of ‘ethical challenges’, working example will be presented which will identify the strengths, challenges and potential options researchers may explore. This exercise will help to explain that there are no ‘black and white’ answers to the ethical challenges, but there are core principles that researchers need to keep in mind (linked back to the principles of safely involving people with lived experience outlined above). Participants will also be encouraged to share the challenges they have faced in relation to these issues and solutions they have developed, as well as any other challenges they have encountered.
        FACILITATOR
        Jo Farmer is a Lived Experience Consultant. Jo's focus is to work with organisations to build the capability and capacity of their people to put the person back into the system and restore individuals’ and communities’ autonomy and empowerment. Jo's work prioritises those who have been marginalised through her approach to evaluation and research, with the aim to ensure people are heard, have power, and can find and build community. 
        SPONSORED BY MINGDGARDENS NEUROSCIENCE NETWORK
        This workshop open to the public, however, there is a discount for employees and staff of Mindgardens member organisations: South Eastern Sydney Local Health District, Black Dog Institute, NeuRA and UNSW. Use your staff email and the code: ETHICSVIP24 to access staff tickets.
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