Webinar: Global research inequity and opportunities for childhood dementia

A report released by Childhood Dementia Initiative in March 2024 has revealed ongoing, pervasive research neglect and inequity as well as concerning trends in global childhood dementia research activity.  

Childhood Dementia Global Clinical Trial Landscape Analysis analysed global clinical trial activity and research funding levels. 

In this webinar the results of this analysis will be presented followed by a panel discussion and Q&A with global experts. We will discuss opportunities for change that will accelerate the development of life saving treatments and cures.

Panellists: 

• Dr Matthew Ellinwood, Chief Scientific Officer at the National MPS Society and Professor Emeritus of Animal Science, Iowa State University
  
• Dr Leslie Meltzer, Chief Medical Officer, Orchard Therapeutics
  
• Felicity McManus, Family advocate and parent of a child with a dementia condition
• Professor John Christodoulou, Chair of Genomic Medicine, Department of Paediatrics, University of Melbourne and the Co-Leader of the Brain and Mitochondrial Research Group at the Murdoch Children's Research Institute
• Dr Kristina Elvidge, Head of Research, Childhood Dementia Initiative.
  

Co-chaired by:

• Professor Kim Hemsley, Professor at Flinders University and Head of the Childhood Dementia Research Group at Flinders Health and Medical Research Institute. Kim is a member of Childhood Dementia Initiative's Scientific and Medical Advisory Committee; and
• Tiffany Boughtwood, Managing Director of Australian Genomics. Tiff is a Childhood Dementia Initiative Board Member and Chair of the Scientific and Medical Advisory Committee.

We apologise that the time may not suit our friends in Europe. The webinar will be recorded and sent to all registrants. 

Click on the 'Add to calendar' link above to see the event day and time in your own time zone, or see below as a guide.

About the Childhood Dementia Webinar Series: The Childhood Dementia webinar series aims to cover a range of topics to enhance engagement and foster collaborations amongst researchers, clinicians, and industry experts to accelerate research and development of treatments for childhood dementia. Thank you to Illumina Corporate Foundation for supporting the webinar series.