Connected Health Alliance is a not-for-profit organisation, ACNC-registered charity and Ehlers Danlos Society CORE Network of Excellence dedicated to improving healthcare and outcomes for people living with hypermobility conditions.
Our key activities include delivering interdisciplinary medical and allied health care through our Wollongong clinic, advancing clinician understanding via our comprehensive clinician education program, and contributing to research and broader advocacy.
Activities we are currently working on include:
1) Our new Wollongong Clinic - we're currently in the very exciting process of fitting out a custom-designed clinic in Wollongong, NSW that will become CHA's new home in early 2026. Created by hypermobile people for hypermobile people, the space is built for accessibility, comfort, and community connection, while also allowing us to expand our interdisciplinary services and reach.
2) Delivering clinician education - we’re currently developing our 2026 season of Clinician Roundtable, an education series aimed at improving clinician confidence and competency in hypermobility care. Funds support content development, clinician involvement and distribution, which are essential as many contributors are currently donating their time to help address this major bottleneck in care.
3) Funding lived-experience roles - our non-clinical, lived-experience team members contribute across research, grant-seeking, fundraising, social media, community engagement, and administrative coordination. Funds raised will help sustain these meaningful roles, keeping lived experience at the heart of our work and strengthening our flexible workforce capacity.
Connected Health Alliance is directed by Nicole Frost, Dr Megan Thomas and Savita Sandhu - clinicians with lived experience who guide our mission and vision. We are also supported by our Fundraising Coordinator, Leah Harris, who helps sustain and expand our impact.
Learn more about CHA here: https://www.connectedhealthalliance.org.au/
