Making the Most of Now
Making the Most of Now is a social enterprise that supports organisations advancing understanding of rare diseases and driving innovation in their diagnosis and treatment.
We help improve outcomes for the rare disease community by enabling the voice of the patient to be at the centre of the rare disease ecosystem from research to delivery of care.
Combining lived experience with strategic and operational management expertise, we provide organisations with strategic planning and operational management, event management and communications management support. We are a catalyst for innovation and a connector of communities and ideas across the rare disease ecosystem.
Project MMN
Dedicated to amplifying patient voices and transforming rare disease care. Making the Most of Now invests its profits in Project MMN.
Project MMN is dedicated to improving understanding and awareness of Multifocal Motor Neuropathy (MMN) and supporting those affected by it.
Through transformative cycling adventures and community events we increase understanding of MMN, inspire the MMN community and improve well being in it.
