I'm Phoebe, Tallulah Moon's proud God Mother and childhood friend of Tallulah's mum, Golden, who heads up this incredible research campaign in a desperate bid to save her daughter.
Until recently, there was no hope for kids like Tallulah- no treatment, no cure. Now thanks to 'Our Moon's Mission' Talllulah and a bunch of kids around the world have hope for a clinical trial to stop this neurodegenerative disease, and cure SPG56!
Help us address this serious unmet need in health of these children today. Join #TallulahsArmy simply by becoming a supporter. Advocate, share Tallulah's story of hope, and join us as we rally to cure SPG56.