Smith-Magenis Syndrome Australia is comprised of a small team of Australian parents, with children diagnosed with Smith-Magenis Syndrome (SMS). We have come together with a common desire to drive a greater local Australian awareness, support and a sense of community; enhancing the lives of children with SMS, and their families.
SMS Australia is a registered charity and not-for-profit organisation. Our work includes awareness campaigning, interfacing with the specialist and educational community, facilitating respite camps, disseminating the latest research and guidance, helping families navigate the NDIS and building a strong network of families and support professionals.