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Move for Myhre

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Bellambi Beach
, australia
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Sun, 23 Feb 2025, 10am - 12pm AEDT

Event description

Join us for the day to move, connect, and support a life-changing cause.

Start your day with an energising Pilates session by the ocean, followed by refreshing ice baths, great coffee, and meaningful connections. If you're bringing little ones, don’t worry—bring a picnic rug, and we’ll have toys and games to keep them entertained! 

Need a yoga mat for the occasion? We’ve got you covered- We are selling limited edition coconut fibre thick yoga mats with all profits being dedicated to raising funds.

This event will support the Myhre Syndrome Foundation. Every dollar raised will go toward starting a dedicated foundation in Australia, helping to advance research and support for families impacted by Myhre Syndrome. 

**Why Join Us?**
- Move with purpose pilates session (catered for beginners to advanced).
- Energise with the ultimate reset -ice baths  
- Treat yourself to coffee, light refreshments
- Make a real difference in the lives of families affected by Myhre Syndrome. 

What is Myhre Syndrome? — Myhre Syndrome Foundation

**Why it's important to us?**

This fundraiser will kickstart our ambition of finding a cure for Myhre Syndrome through a dedicated foundation in Australia, that will be closely aligned with the Myhre Syndrome Foundation international. They are doing amazing work and have fast tracked research, advocacy and partnerships with leading clinicians and researchers internationally in a few short years. Our Felix is the youngest person in Australia to be diagnosed with Myhre Syndrome. After being born with a congenital heart condition; Tetralogy of Fallot and small lung arteries, health professionals also tested him for genetic conditions. 

He was diagnosed at two months old. The diagnosis was difficult to receive. Myhre affects many body systems and issues are progressive, with complications being life limiting. We believe that a cure is achievable in Felix's lifetime and our hope is for Felix to have no progression of symptoms and more complications, and to be able to live a happy, productive and pain free life.

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Tickets for good, not greed Humanitix dedicates 100% of profits from booking fees to charity