RareNET APRIL 2026 Forum

RareNET presents Ali Archibald, Genetic Counsellor and Co-Founder of GenoCare

A/Prof Alison Archibald is a Certified Genetic Counsellor with over 20 years’ experience supporting individuals and families through reproductive genetic testing.

As Co-Founder and Chief Clinical Officer at GenoCare, she is dedicated to providing compassionate, clear, and expert guidance to help patients understand their options and make informed decisions.

In conversation with GSNV CEO, Monica Ferrie, this forum will explore GenoCare’s integrated model of genetic testing, counselling, and embedded mental health support designed around the real experiences of individuals and families navigating uncertainty, diagnosis, and life beyond it.

For many in the rare disease community, the road to answers is long, complex, and emotionally exhausting. This April RareNET Forum is an opportunity to better understand the range of service models available, how referrals work in practice, and why supporting mental wellbeing alongside genomic care matters so deeply.

We invite patients, families, carers, advocates, and clinicians to join us as we ask:

• How can integrated models of care better meet the diverse needs of the rare disease community?

• How do we ensure genomic advances translate into meaningful, compassionate care for individuals and families?

Join this important conversation.