Event description
#Resolution4Rare - what does it mean, and how does it affect us?
The United Nations General Assembly Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families” (Resolution on PLWRD) was first presented in 2021. This first Resolution on PLWRD represented a major shift in the global policy landscape, promising greater integration of rare diseases in the agenda and priorities of the UN system.
Since then, with the tireless work of our community representatives such as Rare Disease International (RDI), the Resolution 4 Rare has been adopted at the 78th World Health Assembly in May 2025!
The adoption of this Resolution by WHO Member States marks a powerful step forward in ensuring equity, visibility, and inclusion for the 300 million people living with a rare disease around the world.
We invite you to attend RareNET July, where Monica Ferrie (GSNV CEO and Board Member, RDI) will bring this news to light and open the conversation to us, the community, and what this means for us.
Tickets for good, not greed Humanitix dedicates 100% of profits from booking fees to charity
