Session 4: Telomere Biology Disorders: Current and Emerging Approaches to Diagnosis, Monitoring and Treatment

Maddie Riewoldt’s Vision, in collaboration with Team Telomere is proud to present the fourth and final Patient and Family Educational Session of 2026 for individuals and families affected by Bone Marrow Failure Syndromes, with a focus on Telomere Biology Disorders.

Our expert speakers will share insights into:

• How Telomere Biology Disorders are diagnosed and monitored, including the role of laboratory testing

• Current and emerging treatment approaches

We are delighted to welcome Associate Professor Lucy Fox and Dr Pasquale Barbaro, who will share their expertise during this informative session.

This session, co-hosted by Maddie’s Vision and Team Telomere, will be chaired by Professor Tracy Bryan, Head of the Cell Biology Unit at Children's Medical Research Institute.

Maddie’s Vision and Team Telomere are committed to tailoring these educational sessions to meet your needs. To get the most out of the session, when completing the registration form, please take the opportunity to submit questions to our guest speakers prior to the event.

If you have any questions about the session, please contact – research@mrv.org.au or Team Telomere at info@teamtelomere.org.

We look forward to seeing you on 24 November!