The collective burden of childhood dementia: panel discussion on unmet needs and opportunities

Following the recent publication of a world-first study on the burden of childhood dementia, this webinar will discuss the global opportunities, benefits and issues arising from the collective consideration of childhood dementia. Our panellists will include clinicians, researchers and health economists involved in the  childhood dementia burden study, and parents of children with dementia. Join us for an insightful discussion on the unmet needs, challenges and opportunities to drive awareness, research, and therapeutic development for childhood dementia.

Panellists:

• Dr. Nicholas Smith, Consultant Neurologist and Department Head, Neurology and Clinical Neurophysiology, Women’s and Children’s Health Network, South Australia and Head of Paediatric Neurodegenerative Diseases Research Group at the University of Adelaide.
• Dr. Michelle Farrar, Professor in Paediatric Neurology, University of New South Wales and Specialist Child Neurologist and Lead for Rare Neurological Diseases Clinical and Research Programs, Sydney Children’s Hospital 
• Dominic Tilden, Director, Thema Consulting, a health economics consultancy based in Sydney, Australia
• Renee Staska, mother of three children diagnosed with a childhood dementia condition (Niemann-Pick disease type C)
• Megan Maack, Director and CEO, Childhood Dementia Initiative, and mother of two children with dementia caused by Sanfilippo syndrome

Chaired by Dr. Kristina Elvidge, Head of Research, Childhood Dementia Initiative.

About the Childhood Dementia Webinar Series: The Childhood Dementia webinar series aims to cover a range of topics to enhance engagement and foster collaborations amongst researchers, clinicians, and industry experts to accelerate research and development of treatments for childhood dementia.