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Webinar: State of Childhood Dementia in Australia 2024

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Wed, 19 Mar, 1pm - 2pm AEDT

Event description

A groundbreaking new Australian report by leading non-profit Childhood Dementia Initiative, titled, ‘State of Childhood Dementia in Australia 2024’, has unveiled the devastating reality faced by Australia’s children with dementia and calls for urgent action to address systemic barriers to cures, treatments and adequate healthcare and support.

Launched at Australia’s Parliament House in Canberra in September 2024, the report highlights:

  • Research is hindered by lack of funding, infrastructure and clinical trial capacity. Fewer than 2% of children with dementia in Australia can join a potentially life-saving clinical trial.
  • Families struggle to get the healthcare and support their children need. This causes tremendous strain, delayed diagnoses and requires parents to fight for services while also managing the complex care of their terminally ill children.

In this webinar the contents of this report will be presented followed by a Q&A. 

Presenters: 

  • Megan Maack, CEO
  • Gail Hilton, Head of Programs
  • Family representative

We apologise that the time may not suit our friends in Europe. The webinar will be recorded and sent to all registrants and will be published on our website. 

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