2026 Zebra Summit

Join Us at The Zebra Summit on November 17–18 at Children's Mercy Research Institute.

The Zebra Summit is a two-day conference bringing together patients, families, researchers, and clinicians who understand the rare disease journey firsthand.

This inaugural event is more than a conference, it's the start of a community. Connect with other rare patients and families, hear directly from leading rare disease researchers and clinicians, and be part of building a center of gravity for rare disease care and innovation right here in our region.

Join 200+ attendees for two days of connection, awareness, and collaboration, because rare is stronger together.

Register today to be part of the inaugural Zebra Summit.