We warmly welcome you to join us for a workshop:

Adult Brothers and Sisters of Siblings with Down Syndrome: Exploring Past Experiences and Current Roles

Growing up with an individual with Down syndrome in the family provides one with the usual sibling issues, and a few more.

There are often more opportunities for siblings without Down syndrome to share responsibility, protect and teach.

There are also more challenging moments involving interaction with peers and the community.

As adult siblings, you often continue to play an important role as friend, mentor, and caregiver.

How does your vision for your siblings’ future match up with your parents’ view and the view of the person with Down syndrome?

How can you better define your current role, and assist going into the future when parents are no longer around?

This workshop will examine lessons learned from the past and discuss challenging moments in the present as you work toward a clear vision of the future for your sibling.

This presentation draws upon Brian Skotko and Sue Levine’s publication in American Journal of Medical Genetics and their new book, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters.

Date: Tuesday 9th April 2024

Time: 10.00am – 11.30am

Venue: Online via Zoom

Registration Fee: Free for members

Membership is FREE. Sign up here:

Become a Member – Down Syndrome NSW

We have lots of member only events throughout the year as well as discounts to our conferences, workshops and training and other great member benefits soon to be announced!

If you are not a member, we will get in touch with you following registration.

This workshop will not be recorded.

The presentation slides will not be shared.