Caring with Rare : Launch of the Rare Disease Carer Support Tool

Caring with Rare: Launch of the Rare Disease Carer Support Tool

Join us for the launch of the Rare Disease Carer Support Tool, developed by carers for carers, hosted by Dr Wendy Austin, MBE. This event will feature a live demonstration of the tool, insights from the community, and a discussion on its necessity and future development. We will explore existing gaps, key priorities, and strategies to ensure the tool remains effective and sustainable for carers.