DEBRA Australia Eighth National Family Camp & Conference 2024

Eighth National EB Family Camp & Conference 2024

Dates: Friday 2nd August (from 6.30pm) to Sunday 4th August (finishing 1pm)

Event location: Rydges South Bank - Brisbane

DEBRA Australia looks forward to welcoming you to the Eighth National Family Camp & Conference 2024. This fantastic opportunity only comes around every two to three years. DEBRA Australia appreciates that there may be a financial strain to attend, therefore the registration fee has been heavily subsidised for families living with EB to minimise costs involved.

This event is a great opportunity to attend and network with other families and learn all things EB. The children have an amazing time and can make lifelong friendships. For any non-immediate extended family members also wishing to attend, please contact admin@debra.org.au for more information as higher costs apply and there are limited numbers. If any families require further financial support to attend please contact ebfamilysupport@debra.org.au 

A program will be finalised in the next month and more information will be made available regarding guest speakers and children’s activities.

*Your registration fee covers the conference, accommodation, meals and children's activities from Friday PM to Sunday lunch time.  It does not cover airport transfers. 

DEBRA Australia will assist in funding flights up to the amount of $400 each (return) for the person attending with EB and if they require a dedicated carer (Australian families only). 

Please note: A dedicated carer is someone that is attending specifically as a carer and would not normally otherwise be attending. For more information you can email admin@debra.org.au 

Registration fees:

• $100/adult
• $50 for children (under 18 years)
• $0 for children (under 2 years)

A brief outline of the event includes:

Friday 2nd August

• Accommodation can be accessed from 3pm onwards. A registration table will be in the hotel foyer to sign in and receive your conference information.
• A casual meet and greet dinner will be held at 6.30pm to welcome everyone on the top level of the hotel.

Saturday 3rd August

• Parents and guests attend the full day conference from 9.30am to learn from guest speakers. Workshops will be held in the afternoon discussing hands on wound care - dressing products, genetics and skin cancer. Trade displays will be also be available during breaks to see what EB products are available.
• Meanwhile the children go out for the day with our lovely handpicked volunteers and nurses to visit some fun activities. This year they will be visiting the Lone Pine Koala Sanctuary in the morning and then a fun afternoon playing laser skirmish and ten pin bowling. There will also be a toddler’s room for the little ones (under 5 years) not attending the excursion.
• Saturday night there will be a two course dinner with entertainment and music from the DJ to dance the night away.

Sunday 4th August

• The conference will commence at 10am to learn more about EB and what is happening at a DEBRA Australia and DEBRA International level.
• Onsite activities will be held for the children from 9.30am and spending time with the DEBRA Ambassadors. The toddler’s room will also be in use this morning with fun activities.
• At midday a farewell lunch will finish off the conference and camp before everyone departs.