The UNSW GeneEQUAL team is an inclusive research team of self-advocates, researchers and health care professionals.

Together they have followed the six steps of the UNSW Disability Innovation Institute's guidelines Doing Research Inclusively: Co-Production in Action to make an educational toolkit for health care professions on NSW Health's Centre for Genetics Education website. This was co-produced to enable a more inclusive, person centred and respectful model of genetic health care with people with intellectual disability.

In our webinar, you will hear from GeneEQUAL's researchers and co-researchers about their experiences with the co-production process, and how this has led to an impactful resource and empowerment for people with intellectual disability.

Speaker Bios

Emma Palmer is a clinical genetics doctor at Sydney Children's Hospital and a researcher at UNSW. Her research aims to improve the patient journey for the 2 million Australians and 300 million people globally with a rare disease.

Iva Strnadová works as a Professor of Special Education and Disability Studies at the School of Education at UNSW Sydney. She teaches current and future teachers how to best support students with disability in their classes. She also works on many research projects.

Julie Loblinzk OAM is an Adjunct Lecturer at the School of Education at UNSW Sydney. She is a co-researcher working with Iva on many research projects. Julie is also a Board Member of Self Advocacy Sydney.

Skie Sarfaraz is a Team Leader for the Leadership and Peer Support program at Self Advocacy Sydney. She is also an Ambassador for Kindship, supporting other parents and carers of children with disabilities.

Contact the host of DII Webinar: The GeneEQUAL Team on Co-Production

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