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    'Jeans for Genes' Morning Tea with CMRI Foundation

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    1A Wolseley Cres
    point piper, australia
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    Event description

    Children’s Medical Research Institute (CMRI) Foundation invites you for a special morning tea to celebrate Jeans for Genes Day.

    Thirty years ago, CMRI created ‘Jeans for Genes’ Day to raise awareness about the 1 in every 20 children born with a genetic disease or birth defect, and to raise funds to launch its gene therapy research program. Today, we celebrate the successes of gene therapy in treating and effectively curing kids of formerly fatal conditions, while acknowledging there are still many more diseases to be solved.

    Please join us for morning tea to celebrate our wonderful scientists, and hear how they are developing treatments and cures for genetic diseases and cancer to one day turn ‘incurable’, into ‘curable’. Our special guest speaker, Associate Professor Anai Gonzalez Cordero, will deliver her talk at 9.30am, followed by the inspiring story of the Sharpe Family, the parents of little Alessia, who was the first patient in the world to receive the Spinal Muscular Atrophy Gene Therapy, Zolgensma. 

    For any general queries, please forward them to Chamira Gamage (Senior Relationship Manager, CMRI), cgamage@cmri.org.au.

    If you are unable to attend, you are still welcome to make a donation via this Humanitix page, by clicking on the 'Get Tickets or Donate' button on the top right of this page, which will lead you to the donation button.

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