In this workshop we explore in detail the EURORDIS Mental Health Toolkit and discuss with leaders on how the Australian rare disease community can benefit from a co-designed toolkit.

Hear from Syndromes Without a Name (SWAN) community member Joel Taggart as he considers the impact of a mental health toolkit on individuals and their family networks living with undiagnosed and rare disease along with Claire Kinglsey, Support Group Leader of Leukodystrophy Australia.

This FREE workshop is hosted by Genetic Alliance Australia CEO, Emma Bonser and sure to raise valuable discussions on mental health support across our genetic, undiagnosed and rare disease community.

We look fforward to discussing how we can embed rare-aware mental health services within primary health care to:

Strengthen dialogue between healthcare professionals and the rare disease community.
Reduce stigma and social isolation through shared understanding.
Improve access to care that recognises the emotional, social, and psychological realities of living with a rare condition.

We look forward to hearing your voice!

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