Moyamoya Australia launches documentary 'The Thing about Jed' with Professor Marcus Stoodley

'The Thing about Jed’ Book Documentary Launch

The thing about Jed is the story of extremes, from a diagnosis of a rare disease to the highs of meeting one of Hollywood’s favourite characters, and then to the crashing lows of losing a friend in the most tragic circumstances. The story tells of how one family make daily choices, all taught to them by their son, who suffers from a rare brain disease, Moyamoya.

Nicola Baker established Moyamoya Australia, after her 19-year-old son is afflicted with moyamoya Disease. Jed had his first stroke from this disease at just 11 months old, which affects one in 100,000 and there is very little known about it. Nicola established the foundation to provide information, support, and networking to those families who are dealing with this disease.  This is Nicola's first book and she is hoping that her story will give courage and strength to anyone who is going through a difficult time in their lives, either to illness or tragedy.

Moyamoya Australia offers funding to families to help with some of the costs associated with having a chronically ill family member. Moyamoya Australia have also gifted substantially to Macquarie University Neurosciences to assist in training and research of this disease. Nicola has been nominated as a Finalist in Small Business Awards. 

Professor Stoodley is head of neurosurgery and Clinical Program Head of neurosurgery at MQ Health. Professor Stoodley’s clinical subspecialty qualification is in neurovascular surgery. Professor Stoodley leads a team of researchers in the Faculty of Medicine, Health and Human Sciences and has clinical subspecialty qualification in neurovascular surgery.

In addition to managing aneurysms and vascular malformations, he has become an Australian leader in cerebral bypass surgery, especially in the treatment of moyamoya disease.

Join us to celebrate the launch of the documentary to Nicola's book and learn more about this rare disease from Professor Marcus Stoodley. 

To discover about Moyamoya Australia visit: Home - Moyamoya Australia

To donate to Moyamoya Australia for World Moyamoya day on 5th May: Donate - Moyamoya Australia

Venue

25 Wally's Walk, C122 Exhibition Space

Parking
Please refer to the map below which has been highlighted as the closest parking area