MRKH One - International MRKH Day 2026

Agenda

• 3:00 pm - 4:00 pm

  Welcome

  Welcome to MRKH One. This short welcome video brings together voices from across our global community to reflect the heart of MRKH One — connection, compassion, and collective strength.

• 4:00 pm - 5:55 pm

  Managing Trauma Masterclass with Dr Ash Moreland

  Hosted by MRKH Australia. This two-hour interactive session offers a gentle, reflective space for people living with MRKH to reconnect with themselves beyond diagnosis. Through guided reflection, journaling, and inner exploration, participants are supported to process identity, grief, and their relationship with their body while gently settling the nervous system. The session aims to foster grounding, self-trust, and a renewed sense of belonging, helping participants feel less alone and more connected to who they are beneath medical labels.

• 6:00 pm - 7:00 pm

  Building MRKH Stars: A Story of Hope & Community

  Hosted by MRKH Stars. Vics Lane and TK Kennedy share the deeply human journey behind MRKH Stars, from the shock of their teenage diagnoses to building a global peer-to-peer support community. This conversation explores friendship, resilience, and the healing power of shared experience in creating a space where young people with MRKH feel truly seen and supported.

• 7:00 pm - 8:00 am

  The Art of Being More Than MRKH - Our Ecosystem. Your Voice.

  Hosted by Mind Over MRKH. Ellamae leads a 45-minute interactive session exploring community building, networks of support, and the growth of The MRKH Nest as a directory and self-development space. The session shares a future vision for a connected global MRKH ecosystem, highlighting community-led media, shared storytelling, and collaboration beyond diagnosis so people can truly belong and thrive.

• 8:00 pm - 9:00 pm

  "Am I Healing... or Just Getting By? How to recognize coping patterns and gently shift toward real healing"

  Hosted by Sumaavi Coaching. This is a gentle, reflective workshop designed to help individuals living with MRKH explore the difference between coping to survive and healing to move forward. Many people learn how to “manage” life with MRKH, but still feel stuck, emotionally guarded, or unsure how to truly move ahead. This session creates a safe, supportive space to pause, reflect, and begin that shift. This workshop is for anyone who has been getting by, staying strong, or pushing through, yet wonders if there is another way. Together, we’ll explore common coping patterns, emotional armor, and protective strategies that often develop around MRKH, and gently examine how they may be helping and also holding you back. Through guided reflection, grounding exercises, and compassionate reframing, you’ll begin to identify what healing can look like for you. Participants will leave with greater clarity, self-compassion, and practical tools to support emotional healing. You can expect to walk away with increased awareness of your own coping patterns, simple techniques to regulate emotions or interrupt self-critical thoughts. No fixing, no pressure, just honest insight, support, and a path forward.

• 9:00 pm - 10:00 pm

  Cul De Sac Club : Vagina! Vagina! Vagina!

  Hosted by Beautiful You MRKH. This panel brings together women who have achieved vaginal lengthening through different approaches, offering honest insight into the options available and what each experience can involve. The aim of the session is to reduce confusion, openly answer questions, and support informed, empowered decision-making around a deeply personal choice. From session lead Madeline: she shares how finding a sense of control through dilation became a key part of her healing, while also acknowledging the emotional difficulty and unpredictability of the process, and hopes participants leave with greater clarity, reassurance, and a sense of belonging — even in “the club nobody ever thought they’d join.”

• 10:00 pm - 11:00 pm

  Entre Tabúes y Realidades: El Viaje de Vivir con MRKH

  This is a session delivered in Spanish and hosted by Beautiful You MRKH. Este encuentro virtual ha sido creado como un espacio seguro, respetuoso y libre de juicios para la comunidad MRKH. Será guiado por la Embajadora del Oeste, Cinthia, con el acompañamiento de Michel, y tiene como propósito abrir diálogos honestos sobre MRKH, romper tabúes culturales y dar voz a experiencias que muchas mujeres han vivido en silencio. Conversaremos sobre comentarios y creencias que pueden resultar dolorosos, la vergüenza que a menudo rodea el diagnóstico y la importancia de reconocer que el valor de una mujer no está ligado a su capacidad de gestar o tener hijos. También habrá un espacio para escuchar, compartir y acompañarnos, recordando que MRKH es parte de nuestra historia, pero no define quiénes somos.

• 11:00 pm - 12:00 am

  In This Together: A Parent Support Hour

  Hosted by Beautiful You MRKH This parent-focused session is created just for parents and caregivers with children diagnosed with MRKH. It is a chance to connect, ask questions, and feel supported in a safe and understanding space. Questions may be submitted anonymously or with your name, and a live question link will be open for one full week leading up to the session, so you can participate in whatever way feels most comfortable. Ask your questions for the Q&A at the link below! Q&A opens February 13th, and may be selected for the panel during the Q&A session on February 20th. Questions can be asked anonymously. https://app.sli.do/event/nMdLi7jVVA6XrLQiAEXCoM

• 12:00 am - 1:00 am

  Peer Support Session: Tricky conversations and sticky situations that comes with self-disclosure & setting boundaries

  Hosted by MRKH Australia. **This session due to the interactive nature of a peer support session is not set up as a webinar, therefore all participants will be able to have their camera on. This peer-led online session for young people aged 16–25 with MRKH creates a supportive, non-clinical space to explore self-disclosure, boundaries, and navigating relationships. Through open conversation and shared lived experience, participants can reflect on when and how to disclose MRKH, set boundaries, and respond to curiosity or pressure, with sharing always optional. The session is facilitated with emotional safety and choice at its core, aiming to reduce isolation, build confidence, and normalise the many ways people with MRKH navigate relationships over time.

• 1:00 am - 2:00 am

  Uterus Transplantation

  Hosted by MRKH Australia - Featuring Prue Craven (Aus) and Lauren Fowler (UK) Prue is 39yrs old and lives in Melbourne Australia with her husband Tom, daughter Rose and chihuahua rescue Annie. She works as a paediatric and school nurse, and advocates for the MRKH community via her role as MRKH Australia’s Vice President. Prue was diagnosed with MRKH when she was 17, she knew she could do something extraordinary with her life and the diagnosis would not define her. She wanted to be a mother, so she embarked on the longest journey, eventually undergoing a live donor uterine transplant in 2023, carrying a pregnancy and giving birth to her daughter Rose in 2024. Prue believes in making the impossible possible, and shining a light on women’s health and the power of community.

• 2:00 am - 3:00 am

  Hidden but Rising: Voices of MRKH Women from India

  Hosted by Indian MRKHers Corner. This powerful session will explore the lived reality of women with MRKH in India — a reality that is often hidden behind cultural silence, stigma, and limited access to accurate information and specialised care. Our speakers will share insights into the unique social and medical challenges faced by Indian women with MRKH, including barriers to diagnosis, marriage expectations, fertility pressures, and the emotional toll of secrecy and isolation. They will also present available statistics, highlight gaps in data and services, and speak candidly about the urgent need for increased awareness and education. Importantly, this session will not only focus on challenges, but on strength. Attendees will hear how grassroots support networks are emerging, how advocacy efforts are gaining momentum, and how women are beginning to claim space, voice, and visibility in a society where reproductive expectations carry immense weight. This conversation will shine a light on issues requiring global attention — from equitable healthcare access and psychological support to ethical fertility pathways and international collaboration. Hidden for too long, these voices are rising. And the world needs to listen.

• 3:00 am - 5:00 am

  Movie Screening: Fitting In

  Hosted by MRKH Australia Directed by and Starring Molly McGlynn Rating: (R) (Sexual Content|Language Throughout|Drug Use and Drinking) Please use your discretion when watching this film. Parental discretion is recommended for anyone under 16. Fitting In is a powerful indie film that follows a teenage girl navigating life with MRKH, exploring identity, body image, and belonging with honesty and heart. The session invites viewers to experience the film as a shared moment of recognition and connection, followed by gentle reflection and conversation to process emotions, ask questions, and feel supported within community.

• 5:00 am - 6:00 am

  Reset & Restore: Breathwork Session

  Hosted by MRKH Stars A deeply calming workshop to help you slow down, reset and restore. The session will include gentle breathwork, restorative yoga poses and a guided meditation to settle the nervous system and encourage deep relaxation. Suitable for all levels, this class offers a quiet, nourishing space to rest.

• 6:00 am - 7:00 am

  MRKH and Mental Health

  Hosted by MRKH Connect This session will focus on the mental health impact of MRKH through an interactive session designed to help us consider our strength, skills and hopes as it relates to our journey. Something to reflect on and visualise that can be revisited over time. This guided session will talk through the process of visualising our journey and the important components within it by using a tree as a metaphor for our life, strength, challenges, support and future hopes through roots, ground, trunk, branches and leaves.

• 7:00 am - 8:00 am

  Mind Over MRKH - Writing your story

  Hosted by Mind Over MRKH Writing Your Story is a reflective and empowering workshop led by Natalia Shvarts, author of I Don’t Matter: In Search of Home. Natalia shares the inspiration behind her book, why this story matters now, and her approach to writing from truth and resilience. Participants are guided through practical exercises to clarify their “why,” identify their ideal reader, define values, and map their personal story. The session explores reframing experiences, writing from a position of power, and crafting a meaningful message for the reader. This workshop invites writers to transform lived experience into purposeful, impactful storytelling. Natalia will also feature the incredible MRKH poet, Stacey Brown, who will also share how writing has contributed to her healing journey.

• 8:00 am - 9:00 am

  Cycle Tracking for the MRKH Community

  This session is delivered in Portuguese and is hosted by MRKH Portugal. Este workshop ensina pessoas com a síndrome de MRKH a utilizar Métodos de Perceção de Fertilidade baseados em evidência, adaptados à sua anatomia única. Apesar da ausência de útero e colo do útero, as pessoas com MRKH mantêm o funcionamento ovárico e o ciclo hormonal normais. Iremos explorar biomarcadores como a Temperatura Corporal Basal, testes urinários de Progesterona e biomarcadores terciários como a Mittelschmerz (dor ovulatória) para identificar a ovulação. As participantes aprenderão a monitorizar a sua atividade hormonal apesar da ausência de menstruação. Junte-se a nós para desenvolver a sua literacia corporal!

• 9:00 am - 10:00 am

  Mind Over MRKH - Hormones & Cycles

  Hosted by Mind Over MRKH. Without periods, it is hard to get to know our minds and bodies. Natalie will take us through an informative and interactive session on getting to know our MRKH cycle and feeling confident in understanding our bodies. She will talk through the phases we go through, tracking our hormones and resources, symptoms and the impact each can have on our bodies and mental health. This is not a medical session but rather aims to encourage self- knowledge and understanding. Amy Thompson from Moody Month, will feature as a guest for a short interview on her app “Moody Month” and book “Moody”.

• 10:00 am - 11:00 am

  TBC Title - Session by As Mulheres Em Nós - AMN

  A Session hosted by Mozambique MRKH Organisation - As Mulheres Em Nós - AMN

• 11:00 am - 1:00 pm

  Ascolto, supporto e orientamento nella cura quotidiana delle donne ROKI

  This session is delivered in Italian by ANIMrkhS Onlus - Associazione Nazionale Italiana Sindrome di Mayer Rokitansky Kuster Hauser Questa sessione è uno spazio di supporto informale dedicato alle ragazze con ROKI e alle loro famiglie. È pensata come una chiacchierata aperta, più che come un intervento tecnico, in cui le partecipanti possano sentirsi libere di condividere esperienze, domande e difficoltà quotidiane. L’incontro si concentrerà sulle principali problematiche che le donne affrontano in Italia nel rapporto con il sistema sanitario e amministrativo di base, come il riconoscimento dell’invalidità, le esenzioni sanitarie, l’accesso a supporti e specialisti, e la mancanza di informazioni chiare. Su molti di questi temi c’è ancora poca conoscenza e un forte bisogno di orientamento e condivisione. Una parte della sessione sarà dedicata anche alla presentazione di un nuovo progetto di raccolta e mappatura di specialisti di riferimento, ascoltando direttamente i bisogni delle ragazze per capire quali figure professionali siano oggi più necessarie. Nel suo insieme, la sessione vuole offrire ascolto, rassicurazione e indicazioni pratiche, rafforzando il senso di comunità e di supporto reciproco.

• 11:00 am - 12:00 pm

  Supporting our Supporters - Panel

  Hosted by MRKH Connect. This session will be a panel discussion on how we as a community also support our supporters whether mums, dads, friends or others who are there for us on our journey. We invite all to join and participate as we encourage interaction and discussion through this facilitated discussion with guest speakers from partners, friends, family members who join us to share their perspectives and help prompt a wider discussion. A space to ask questions, share experiences and feel supported.

• 12:00 pm - 1:00 pm

  Pathways to Parenthood

  Hosted by Beautiful You MRKH. Pathways to Parenthood is a one-hour panel discussion designed to explore the many ways MRKHers can build families. This session brings together panelists who have become parents through a variety of pathways — including adoption, foster-to-adopt, surrogacy, and uterine transplant — offering honest, real-life perspectives shaped by their own lived experience. We will also be joined by a registered nurse who is both an MRKH parent and a member of a uterine transplant team, offering general insight into the process. We will conclude with an open Q&A, offering attendees a safe, supportive space to learn, connect, and gain reassurance that there are many meaningful paths to parenthood.

• 1:00 pm - 2:00 pm

  Redefining Womanhood: Childfree & Fulfilled

  Hosted by Sumaavi Coaching Redefining Womanhood: Childfree & Fulfilled is a compassionate, honest panel discussion designed to explore what it can look like to live a full, meaningful life without children. For many people with MRKH, questions around womanhood, fertility, and fulfillment can feel heavy, complex, and deeply personal. This session creates a supportive space to hear real stories from women who are living childfree lives: by choice, by circumstance, or through a path that included grief, uncertainty, or redefinition and who have found ways to feel whole, purposeful, and fulfilled. This panel is for anyone who is questioning what a fulfilling life can look like without children, struggling with grief or societal expectations, or seeking reassurance that choosing (or accepting) a childfree life does not mean settling for less. Through guided conversation moderated by Coach Rima, panelists will share their lived experiences navigating MRKH, coping with emotions around fertility, responding to external pressures, and redefining womanhood on their own terms. The discussion will be honest and nuanced, acknowledging both challenges and growth, without promoting a single “right” path. Participants will leave with a broader, more compassionate understanding of fulfillment, greater permission to trust their own choices, and renewed hope for what is possible. You can expect to walk away feeling less alone, more validated in your experience, and inspired by real examples of lives filled with purpose, connection, and meaning beyond traditional definitions of womanhood. This is not about convincing or prescribing, it’s about expanding what’s possible and honoring every individual journey.

• 2:00 pm - 3:00 pm

  Disclosure

  Hosted by MRKH Canada

• 3:00 pm - 4:00 pm

  Closing Session

  The closing session brings MRKH One to a gentle, grounding close — a moment to reflect on the voices shared, the connections formed, and the strength of community across the globe. It offers gratitude, hope, and a reminder that this is not an ending, but a continuation of belonging, support, and shared purpose beyond the event.