POLAND SYNDROME AWARENESS DAY GASTROPUB LUNCH

Casual lunch meet up for those affected by Poland Syndrome and wanting to celebrate Poland Syndrome Awareness Day 2022, April 30th with us.  

After our successful park picnic to celebrate Rare Disease Day 2022. Poland Syndromighties is a Partner of Rare Voices Australia.

"Poland syndrome is a birth defect characterized by an underdeveloped chest muscle and short webbed fingers on one side of the body. There may also be short ribs, less fat, and breast and nipple abnormalities on the same side of the body. Typically, the right side is involved. Those affected generally have normal movement and health.

The cause of Poland syndrome is unknown. One theory is that it is due to disruption of blood flow during embryonic development. It is generally not inherited from a person's parents, and no genes that contribute to the disorder have been identified. Diagnosis of Poland syndrome is based on its symptoms. Often, those with the syndrome remain undiagnosed, and some may not realize they have it until puberty.

Treatment of Poland syndrome depends on its severity and may include surgical correction. The syndrome affects about 1 in 20,000 newborns, and males are affected twice as often as females. It is named after English surgeon Sir Alfred Poland, who described the condition when he was a student in 1841." (Wikipedia 2022).

Covid Safety essentials will be check-in of only double vaccinated, Covid safe distancing and no sharing of food/drinks. No arm wrestling permitted, unless using affected arm;-)