Rare Disease Day | BioNexus KC + RareKC
Description
Powered by BioNexus KC in collaboration with RareKC, this event aims to raise awareness and accelerate progress in the diagnosis, care, and treatment of rare diseases. Join patients, families, caregivers, and advocates as we unite to create change for all people living with a rare disease.
Located in KC Chamber Boardroom, Union Station, First Floor
30 W. Pershing rd, Kansas City, MO 64108
Program
11:30 AM
Check in & Lunch
12:00 PM
Welcome: Dennis Ridenour, BioNexus KC & Kelly Ranallo, RareKC
12:05 PM
Pipeline for Treatment for Ultra Rare Diseases: J. Andrea Sierra-Delgado, MD, University of Missouri NextGen Precision Health
12:40 PM
Overview and Impact of NORD® Rare Disease Center of Excellence: Bryce Heese, MD, Children's Mercy
1:15 PM
Empowerment Through Clinician-Family Partnership: Nicole Crump, RESTkc
1:55 PM
Program Reflections
3:00 PM
Adjourn
FAQs
- Where is parking?
Parking will be in the West Yard Garage at Union Station. You will receive validation when you check in at the registration desk.
Tickets for good, not greed Humanitix dedicates 100% of profits from booking fees to charity
