RareNET Spotlight: Matilda Haas – Director, Community Impact and Partnerships,

Genomics Australia

Join us for this special RareNET event as we welcome Matilda Haas, Director, Community Impact and Partnerships at Genomics Australia, to present on her new role and the key objectives to build meaningful connections with communities, including our rare disease community.

The establishment of Genomics Australia on July 1, 2025, presents valuable opportunities for partnerships across government, research, and community sectors. Matilda is driving forward initiatives that ensure the integration of genomics into the health system reflects the priorities, values, and expectations of the people it serves.

Hear Matilda discuss Genomics Australia’s priorities to:

Establish processes to listen to and respond to community needs
Address the ethical, legal, and social implications of genomics in everyday healthcare
Engage Aboriginal and Torres Strait Islander communities, ensuring their voices are central in decision-making

Matilda’s commitment to collaborative, inclusive, and ethical engagement makes her an invaluable contributor to Australia’s rare disease and genomics community. Don’t miss the opportunity to hear from Matilda Haas as she shares insights on the genomic future for Australia.