Darwin Moon Walk for Our Moon's Mission

Calling everyone in the Top End to a Moonwalk on 21 July to help cure rare disease for our beloved Tallulah Moon!

Be part of the first awesome Community Moonwalk for family-led charity 'Our Moon's Mission' to help cure the rare neurodegenerative disease SPG56 afflicting Darwn-born five-year-old Tallulah Moon and kids like her.

Event Highlights:
• Full Moon Walk: On a Dry Season evening join a wheelchair friendly, family friendly moonlit walk from East Point Gates with the legendary Darwin Community. Be there by5.45pm to meet, get some extra raffle tickets (for awesome prizes from local Darwin businesses) and bring on the moonrise as we walk as one for 'Our Moon's Mission' along glorious East Point.
• Awesome Darwin Raffle: On on Sunday 21 July, you can head to East Point at 5.45pm to have a chance to win $1000 awesome gifts, experiences and services generously donated from Darwin businesses in support of Our Moon's Mission. Special thanks to our sponsors Roma Bar, Hanuman, EmBella Jewellery, Aqua Park Darwin, Snapper Rocks, Paraphernalia, Parap Fine Foods, Territory Sports Medicine and Hot Tamale! 

Go on! Join our supportive, local community under a magnificent full moon. Every dollar we raise goes directly to Our Moon's Mission- funding the cure for Tallulah Moon and kids like her.

WHEN PLANETS, STARS and MOON SIGNS ALIGN for Our Moon's Mission

This year's moonwalk magically coincides with the 56th anniversary of the historic moon landing on 21 July, 1969. Just as humanity achieved the extraordinary feat of landing on the moon (SPG)56 years ago we are determined to conquer and cure SPG56. The science is there but the funds are not, and we couldn't be blessed with a more inspiring date to make this moonshot possible! 

The Moonwalk will bring together friends, families, and community all over the globe, hosting epic moonwalks walk under the full moon for Our Moon's Mission. 

As the representatives of Tallulah Moon's hometown, join us as we shoot for the moon to cure SPG56!

ABOUT OUR RESEARCH AND MISSION TOWARDS CLINICAL TRIAL

The ACNC registered charity Genetic Cures for Kids has been dedicatedly funding genetic research for three years through our first mission 'Our Moon's Mission'. The goal is to find a cure for Tallulah Moon's ultra-rare neurodegenerative disease, SPG56 in time for her and children in her position. Though it may seem like a moonshot, it IS possible.

The challenge in developing treatments for rare diseases lies not in scientific capabilities but in the lack of pharmaceutical support. Small patient populations make it difficult for businesses to profit, leaving parents to navigate the rare disease research journey alone.

Thanks to the monumental efforts of research teams in Australia and the USA, we are now poised to manufacture a gene therapy slated for clinical trial that could cure SPG56. This is a historic moment, addressing an urgent unmet need for a progressive disease that, until now, had no treatment options. Families like ours have been left fearing the future for our children.

Help us make this possible! We need your support to fundraise for the manufacturing of the medicine that could cure SPG56 in time for Tallulah and other children in her position.

Our Moon's Mission requires $3M for a manufacturing run to produce the medicine for clinical trials. Our overall target for this first multi-site Moonwalk is $21K on 21 July. Together, around the world, we can do this! 

March with us under the moon in Darwin on this serendipitous night and let's make this moonshot to cure SPG56 a reality.